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Cystic Fibrosis
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CF Prescriber - Provides a place to search various databases for Cystic Fibrosis articles, links to other CF sites, a message forum and a wide variety of information on management of the disease. |
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Cystic Fibrosis Health FactSheet - Concise factsheet on causes, symptoms and treatment of cystic fibrosis, this factsheet can also be downloaded in Acrobat format |
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Cystic Fibrosis Medicine - Provides free information to professionals involved with the treatment of cystic fibrosis. An open access section is also available to both patients and family |
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Cystic Fibrosis Western Australia - Includes a calendar of events, information for people with CF who travel to Australia from other countries (what their healthcare entitlements are), pointers for teachers of children with CF, and a list of services and support. |
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CysticFibrosis.com - Internet community for cystic fibrosis patients, families and loved ones. Information on clinical trials, gene therapy, testing, associations, research and events. |
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eMedTV - Learn through medically written and reviewed articles about the causes, common symptoms, treatments and the role of genetic testing for Cystic Fibrosis. |
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Home Page-Harminder - Details from an article "CFTR as a cAMP-Dependent Regulator of Sodium Channels". Also, what new treatments might devolop if the theory behind this article prove true. |
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MedlinePlus: Cystic Fibrosis - A source of links which provide news, overviews, diagnosing, symptoms, treatments, clinical trials, and related issues pertaining to CF. |
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MyCysticFibrosis.com - Personal management tools to help track important health measures, together with in-depth articles and personal support from site specialists. Members can share data with caregivers and their healthcare team. |
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Pulmozyme.com - Cystic fibrosis information, symptoms, and treatments. Pulmozyme (dornase alfa) inhalation solution, from Genentech, Inc. |
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The Spirit of Lo - Inspirational Book - Book about Cystic Fibrosis and the effects on the family. Tells the story of an ordinary family and their struggle with having a chronically ill child. |
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