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Chats and Forums
See also:
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Coping With Epilepsy - Peer discussion and support forum. Includes news headlines and a chart of alternative treatment options. |
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Epilepsy-L List - An E-mail based support group for people with epilepsy and those who care about, and for them. |
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EYiE - An IBE project with the objective of giving a voice to young people around the world. Offers a chat room, contacts and information. |
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HealingWell.com: Epilepsy - Message boards and chat dedicated to sharing information, offering support, and coping strategies to better manage this disease. Community moderated by volunteers. |
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IDEA League Family Network - This forum is intended for carers and parents of individuals with Dravet Syndrome, also known as Severe Myoclonic Epilepsy of Infancy and other related sodium channel disorders. Members must register. |
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Vns Message Board - A message board designed for information exchanged related to the Vagus Nerve Stimulator. |
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Yahoo! Groups: Seizure Alert Dogs - Uniting people who benefit from seizure alert or assistance dogs as well as people with epilepsy who benefit from a dog's companionship. Welcoming people who want to learn more about these wonderful dogs. |
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Yahoo! Health Groups: Doose Syndrome - For parents of children who have, or who may have Myoclonic-Astatic Epilepsy, otherwise known as Doose Syndrome, a rare, severe, intractable epilepsy of early childhood. |
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Yahoo! Health Groups: Epilepsy - For people with or know someone with Epilepsy. A place to talk, share stories and gain moral support. All ages welcome. |
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Yahoo! Health Groups: Epilepsy Advocates - Made up of people that suffer from Epilepsy, parents of children with Epilepsy, people whom have previously had Epilepsy and friends of those suffering from Epilepsy. |
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Yahoo! Health Groups: Epilepsy Circle - E-mail and forum support group for those with an interest in epilepsy, whether it is for you, a family member, a friend, pupil or a child that has a seizure disorder or epilepsy. |
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Yahoo! Health Groups: Epilepsy Cured - Shares information on curing and preventing epilepsy and seizures for patients, parents, children, and family members of those suffering from epilepsy. |
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Yahoo! Health Groups: Epilepsy Surgery - Support email forum for those considering surgery or have had brain surgery or Vagus Nerve Stimulator surgery as a treatment option for epilepsy. Registration required. |
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Yahoo! Health Groups: ISGrads - Supporting those with children who have overcome Infantile Spasms, also known as West Syndrome an often debilitating form of epilepsy. |
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Yahoo! Health Groups: Ketogenic - For parents, family members, and care givers who are using the Ketogenic Diet as a means of control for epilepsy or seizure disorders. |
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Yahoo! Health Groups: TLE - Discussion of temporal lobe epilepsy and/or partial complex seizure disorder. For sufferers and friends/family of sufferers. |
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