Chats and Forums

• Health: Support Groups: Conditions and Diseases: Chats and Forums  (1)

MD-List   - Mailing list to provide support for people affected by all different forms of Muscular Dystrophy.

Christians With Duchenne Muscular Dystrophy - Mailing list for Christians who have Duchenne Muscular Dystrophy.

DMD Support List - Mailing list to provide support for people affected by Duchenne Muscular Dystrophy.

Duchenne Muscular Dystrophy Support eGroup - International Rare Disease Support Network (IRDSN) eGroup for making friends, sharing information and providing support for persons affected by Duchenne Muscular Dystrophy.

Dysferlin - Discussion group intended to give patients, families, researchers, and others the opportunity to share information, experiences, and advice about Dysferlin deficiency, which causes Miyoshi Distal Myopathy and Limb-Girdle Muscular Dystrophy type 2B.

FSH Friends Forum - Mailing list for people affected by and having an interest in Facioscapulohumeral Muscular Dystrophy as well as other types of Muscular Dystrophy.

FSH Muscular Dystrophy - Discussion group for people who have Facioscapulohumeral (FSH) Muscular Dystrophy, as well as family and friends.

Limb Girdle Muscular Dystrophy - Discussion group open to anyone interested in making friends, sharing information and providing support for persons affected by Limb Girdle Muscular Dystrophy.

MDA All the Way - Discussion group where anyone affected by a neuromuscular disease can meet old friends and make new friends.

Muscle Disease - Discussion group for parents with children that have a Congenital Muscular Dystrophy, whose child was born with a muscle disease that does not fit any of the other Muscular Dystrophy Association's 40 identifed neuromuscular diseases.

The Muscular Dystrophy Forum - An online support group for people affected by any neuromuscular condition.

Myotonic Dystrophy 2 - Discussion group for those who have genetically confirmed cases of Myotonic Muscular Dystrophy type 2 or who have received a preliminary diagnosis for it.

PROMM (Proximal Myotonic Myopathy) - Discussion group for people with proximal myotonic myopathy (myotonic dystrophy type 2) or people associated with them. Discussions center around symptomology, adaptation and variant manifestation.