Friedreich's Ataxia

See also:

CajunHeart - Kim Bourg describes her life with the condition, and suggests strategies for coping with it in oneself or others. Includes details of symptoms and diagnosis.

Friedreich Ataxia Research Association - Summarises recent progress in ataxia research and the search for better treatment.

Friedreich's Ataxia Fact Sheet - A resources guide and fact sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.

Friedreich's Ataxia Parents Group - With advice for new parents on the disease, and on how the parent might better cope emotionally.

Friedreich's Ataxia Research Alliance - Non-profit organization dedicated to the pursuit of scientific research leading to treatments and a cure.

Friedreichs Ataxia Society Ireland - Voluntary organisation providing support to anyone affected by genetic ataxias. Includes events calendar, membership details, and information on accessibility issues.

GeneClinics: Friedreich Ataxia - An in depth look at this disorder. Includes a summary, diagnosing, molecular genetic testing, clinical description and management.

Matt's Mansion - Describes his life with the condition, and his travels in a wheelchair. Includes information for any disabled person considering foreign travel.

NORD: Friedreich's Ataxia - Offers the synonyms, a general discussion and further resources.

Not Going Quietly - A personal account of diagnosis, daily life, challenges, and international travel. Includes details of treatments, and a photograph gallery.

Swiss Association of Friedreich Ataxia - Parents and friends of patients campaigning for better treatment for ataxics in Switzerland; also sharing news and information about the condition and current research.

Patient loses right-to-food fight - The BBC reports that a man with Friedreich's ataxia has lost the last stage of his legal fight to insist on his being fed artificially in the final stages of his life. (August 8, 2006)

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